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Getting Sick… while already sick

10/26/2016 05:51:29 AM

I have a cold. A throat-tickling, nose-dripping, eye-watering 100 degree fever scorcher of a cold that is making me feel terrible. My muscles feel like lead; whenever I move it’s as if... READ MORE > read more

Being a Master of Disguise Has a Price

10/26/2016 05:50:52 AM

One of the toughest aspects of stigma is facing the accusation that you are faking symptoms to get attention or as an excuse to avoid responsibility. Trying to explain to someone that... READ MORE > read more

Travel Triggers and How to HALT Them

10/25/2016 05:56:44 AM

The movie “Sully” opened recently to mixed reviews. My favorite take on the film came from  Washington Post writer, Elahe Izadi, who writes: “Tom Hanks is a great actor and seems like... READ MORE > read more

What did you accomplish today?

10/24/2016 05:56:52 AM

When your day is lost to a migraine, and the pain and related symptoms sicken and paralyze you, it can feel as if you missed out on all the fun, or that... READ MORE > read more

Just a Headache

10/23/2016 18:17:17 PM

Before I knew what to look for, I assumed that any mild head pain was a “tension headache” and more severe pain was “migraine”. I also assumed that the severity of the... READ MORE > read more

A Tale of Two ER Visits

10/21/2016 06:02:12 AM

Like most of you, I dread going to the emergency room. Lately I have been very lucky, despite my visits being somewhat frequent due to changes in admitting policies and urgent care.... READ MORE > read more

A Migraine Quality of Life

10/20/2016 07:16:18 AM

Recently someone said to me, “It’s good that migraine isn’t interfering with your quality of life.” My first impulse was to think, “Yeah, right. If she only knew.” I know she meant... READ MORE > read more

The Messy Wake of Destruction YOUR Migraine Can Leave Behind

10/19/2016 05:02:08 AM

Recently, patient expert Janet Geddis, otherwise known as “The Migraine Girl”, posted about her experience with the household destruction she finds after being out of commission with a longer-term migraine. The post... READ MORE > read more

My Experience with Onzetra Xsail, the Sumatriptan Nasal Powder

10/19/2016 04:57:25 AM

I had an appointment with my new neurologist last Friday. He’s just a local guy, and the story of why I stopped seeing my renowned headache specialist can be saved for another... READ MORE > read more

Sometimes Gratitude Leaks from my Eyes (or An Awkward Visit to Community Acupuncture)

10/18/2016 06:24:33 AM

In my very first article I confessed to crying at the doctor’s office. This is a recurring event, but not the only public place in which I find myself with a... READ MORE > read more

The desperate decisions brought on by meal skipping

10/18/2016 06:23:39 AM

Like many community members I’ve spoken with, I am an infamous meal-skipper. It’s never intentional, and I don’t have any sort of eating disorder. In fact, I have a really high... READ MORE > read more

Five Ways to Create a Normal Life

10/17/2016 06:07:14 AM

Have you ever felt like life will never be normal again? You’ve tried dozens of different treatments and nothing seems to make a difference. The dream of a normal life feels out of... READ MORE > read more

Hurricanes, Pain, Migraines & Change

10/16/2016 12:20:22 PM is alive with articles about the impact of weather on migraines. Still, with the gigantic 900-mile wide hurricane that swept through several southern states recently, I can’t help but think about... READ MORE > read more

Seven Ways to Lessen Migraine’s Impact on Your Family

10/14/2016 05:55:11 AM

“I feel so guilty for what my migraine attacks do to my kids!” If you’re a parent with migraine, you’ve likely had a similar thought about your own children. It’s impossible to... READ MORE > read more

Getting to Know hollybee + a Recipe

10/13/2016 05:54:52 AM

You know what’s contributors and moderators think about migraine, but there’s more to us than migraine. We’re doing a Getting to Know… series to introduce you to the people behind the... READ MORE > read more

The Big Lie

10/13/2016 05:52:50 AM

When I first started getting migraine attacks, I had the distinct advantage of being surrounded by loved ones who recognized the symptoms and validated my pain. You would think that with all... READ MORE > read more

Don’t Give In to Desperation

10/12/2016 09:55:52 AM

Several years ago, I reached a point of desperation with migraine and decided on a course of action that could have ended in medical and financial disaster. I will be forever grateful... READ MORE > read more

Stimulus Overload

10/12/2016 07:14:30 AM

Recently, we had friends from Albuquerque visiting, so we went out for dinner on Saturday night. We ordered our food and got our drinks and then the fire alarm went off…and it... READ MORE > read more

CGRP Treatment #3

10/11/2016 08:07:17 AM

I have had a week of not being sure what is going on with me. Two days in a row, I developed a moderate migraine in the mid-afternoon and needed to take... READ MORE > read more

Has migraine made me weaker? Part 2

10/10/2016 05:58:11 AM

In “Has migraine made me weaker? Part 1” I concluded that migraine has not made me literally or physically weaker overall, but rather has changed the ways I use, care for, and... READ MORE > read more

Green Light for Migraine? New Study Indicates It Could Help

10/09/2016 18:21:22 PM

We all know the horrors of photosensitivity – when even the smallest hint of light feels like a sledgehammer across the temple. When a migraine attack hits, many of us find ourselves... READ MORE > read more

Getting to Know Tammy

10/09/2016 18:19:52 PM

You know what’s contributors and moderators think about migraine, but there’s more to us than migraine. We’re doing a Getting to Know… series to introduce you to the people behind the... READ MORE > read more

Pain + Insomnia = Painsomnia

10/06/2016 06:02:35 AM

Whether it is because of medication side effects, pain itself, or just life, a lot of us with migraine also deal with occasional insomnia. For me, it happens most frequently when I’m... READ MORE > read more

Getting to Know Kerrie

10/05/2016 21:25:07 PM

You know what’s contributors and moderators think about migraine, but there’s more to us than migraine. We’re doing a Getting to Know… series to introduce you to the people behind the names. We’re sharing... READ MORE > read more

Has Living with Migraine Changed Your Life?

10/05/2016 21:22:06 PM

Recently a migraine story posted to our community followed one community member’s struggle with migraine taking over her life. From difficulties at work, to problems on family trips, and even an entire... READ MORE > read more

Migraine Gets on My Nerves

10/05/2016 05:51:46 AM

Have you heard of the trigeminal nerve? It’s also called the 5th cranial nerve and is responsible for motor control, touch sensation, and pain perception throughout the eyes, face, cheeks, jaw, and... READ MORE > read more

You, Health Information, & the Internet

10/04/2016 18:41:11 PM

The internet and social media are amazing resources for people seeking health information, especially for people living with chronic conditions. While many people appreciate having quick access to a great deal of... READ MORE > read more

The noisy pool party

10/04/2016 12:06:55 PM

Late last fall, I was on a vacation with some friends. I had left my bathing suit behind in Georgia because I had no idea—zero, in fact—that the weather would be unseasonably... READ MORE > read more

Has migraine made me weaker? PART 1

10/04/2016 12:06:12 PM

Like most of us, I have struggled with loving my body. I’m no jock, but the things I love about my body are mostly about what it can do with it. I... READ MORE > read more

Migraine and Inflammation Linked in Young Adults

10/04/2016 06:16:41 AM

Inflammation gets a lot of blame for triggering and exacerbating health conditions, including migraine. The link between inflammation and migraine was reinforced by a study presented at the American Headache Society’s scientific... READ MORE > read more

Failure is Part of the Process

10/02/2016 17:18:36 PM

It can get so discouraging when looking for the right treatment for migraine. There are hundreds of options to try and not enough time to try them all. When faced with one... READ MORE > read more

Amgen Releases Positive Results from Phase 3 ARISE Study

09/30/2016 17:12:50 PM

Amgen has released information regarding their Phase 3 ARISE study, indicating that the study has met its primary endpoints. The study centers around a new treatment co-developed by both Amgen and Novartis... READ MORE > read more

Tornado Warning and No Emergency Migraine Kit

09/30/2016 06:19:36 AM

Right now I’m sitting in my mostly unfinished, concrete basement with my family, along with the cat and dog. My migraine body has been telling me all day that storms were coming,... READ MORE > read more

Take the Cost of Healthcare Survey

09/29/2016 08:30:23 AM

Cost is a major factor in managing a chronic condition such as migraine. There are many things people do to save money and cut costs, however not all patients are aware of... READ MORE > read more

Images of an Invisible Illness 2016

09/29/2016 08:27:37 AM

What Does A Migraine Feel Like? A migraine feels likes a million pokers in my eye. It feels like there’s a cactus in my brain. It feels like I’ve completely lost, not... READ MORE > read more

There is More Than One Path to Living Well With Migraine

09/28/2016 06:28:36 AM

After­­ presenting my winning entry to the “Migraine Moment” short film contest at the American Headache Society and American Migraine Foundation’s 58th Annual Scientific Meeting, I had the fantastic opportunity to stand... READ MORE > read more

Getting to Know Janet (“The Migraine Girl”)

09/27/2016 21:37:36 PM

What’s your favorite color? Red (a deep red as opposed to a tomato red). How old are you? 36 What’s your dream vacation? Can I pick, like, five?  Just kidding. At the... READ MORE > read more

The Kid Conundrum

09/26/2016 05:41:02 AM

I have four munchkins in my life. My two closest girlfriends both have two boys each. They range in ages from 1 to 4 years old. I’m godmother to one, but Auntie... READ MORE > read more

A Review of Soothe, “the Uber of Massage”

09/25/2016 11:48:11 AM

A sore neck, shoulders, and back pretty much come with the territory of chronic migraine. When my health insurance covered massage, I had a 90-minute appointment every week. That kept the body... READ MORE > read more

My Migraine is a River: Coming to Terms With My Chronic Illness

09/23/2016 05:43:15 AM

Nearly all of us with chronic illness know the feeling of constant struggle. There is the fight to move through your day normally and to do the usual tasks that need to... READ MORE > read more

Sometimes I Feel Like a Broken Record

09/22/2016 05:47:49 AM

I’ve come a long way in terms of accepting a life with migraine. After four years of frequent disability I no longer worry about this disease ruining my life, in fact I’m... READ MORE > read more

When My Doctor Gave Up on Me

09/21/2016 05:11:30 AM

The headache specialist said: “Research is finding new treatments, but nothing is available to help you now. You’re the same age as my daughter. I would want her to have relief while she waits... READ MORE > read more

Your Opinion Matters

09/20/2016 05:00:31 AM

I recently participated in a patient survey conducted by a pharmaceutical research company. Although the survey targeted a different type of headache disorder, I still learned a few things that might be... READ MORE > read more

Getting to Know Lisa

09/20/2016 04:59:20 AM

You know what’s contributors and moderators think about migraine, but there’s more to us than migraine. We’re doing a Getting to Know… series to introduce you to the people behind the... READ MORE > read more

Failure of Empathy

09/19/2016 05:29:03 AM

“I’m sorry my work is late. I have migraines both days every weekend,” my classmate in an online science class told me when I called to talk to her about our group... READ MORE > read more

What is Kratom?

09/18/2016 17:57:46 PM

I heard about kratom about three months ago when a friend asked if anyone had ever suggested it to me as a pain reliever. They shared with me an article from Vice... READ MORE > read more

Why the “Migraine Personality” is Total Bunk

09/16/2016 06:06:01 AM

Never heard of the “migraine personality”? Good. But in case you do come across this antiquated psychology, you might want to have some information in your arsenal. The “migraine personality” was coined in... READ MORE > read more

Mania & Migraines

09/15/2016 19:16:21 PM

“I miss out on life’s little moments,” said the woman on the commercial, before the announcer launched into the long list of potential side effects. It caught my attention because I assumed... READ MORE > read more

Help find a cure. Walk or run with us!

09/15/2016 14:16:20 PM

Dear Patient, In addition to pain, sickness, and — for many — daily disability, migraine carries a severe burden of discrimination and negativity from many members of community.  This is social stigma.... READ MORE > read more

Cancelling Out the Good

09/15/2016 04:54:56 AM

Just as the placebo effect can have a positive impact on treatment results, the opposite can be true as well. It’s called the nocebo effect. Because the mind and body are inseparable,... READ MORE > read more

Getting to Know Series: Sarah Hackley

09/14/2016 05:51:27 AM

You know what‘s contributors and moderators think about migraine, but there’s more to us than migraine. We’re doing a Getting to Know… series to introduce you to the people behind the... READ MORE > read more

Newton spurs an attack…

09/14/2016 05:40:47 AM

It was a dark and stormy night… Well, not really. It was neither dark nor stormy where I live in California, but it was stormy elsewhere. In fact, a hurricane recently ripped... READ MORE > read more

Memorable Migraine: My friend’s Brooklyn wedding

09/13/2016 08:43:51 AM

A few years back, I was thrilled to get an invitation in the mail to a dear college friend’s wedding in New York. First of all, I love this girl and knew... READ MORE > read more

The “Migraineur” Controversy

09/12/2016 04:26:50 AM

“Migraineur” is a term used to denote a person who has migraine. As a writer and word-nerd, I began using the word as soon as I learned it, happy to find a... READ MORE > read more

Understanding Placebo Effect

09/11/2016 14:04:07 PM

The rate of placebo effect in clinical trials is around 30%. That rate has been consistent and is an expected outcome. Placebo rates that are higher or lower can call the entire... READ MORE > read more

Advocate for Migraine – With Feet

09/09/2016 13:52:29 PM

Disease advocacy is everywhere.  Pink ribbons abound, as do signs for the American Cancer Society, MS, Parkinson’s, Heart Disease, Alzheimer’s, ALS, Leukemia and the list goes on.  People come to support these... READ MORE > read more

Loss and Longing

09/09/2016 05:34:16 AM

“Facebook is a catalog of food I can’t eat, places I can’t go, events I can’t attend, and friends I can’t spend time with.” That’s what I told my husband yesterday after I... READ MORE > read more

Migraines & Food: Cravings, Triggers, Comfort & Freedom

09/08/2016 06:32:19 AM

Nutrition plays a powerful role for the person living with chronic migraine. What we crave can signal the arrival of a migraine; what we eat can prevent or conversely trigger its occurrence;... READ MORE > read more

Headache Camp #5- Advocating for Yourself

09/08/2016 06:31:31 AM

In mid-July I returned to Jefferson University Hospital in Philadelphia for my 5th Headache Camp. If you haven’t read any of my previous posts on what I’ve dubbed Headache Camp, it’s actually... READ MORE > read more

Migraine Manifest Destiny

09/07/2016 05:43:53 AM

Back when the US was a fledgling nation, a phenomenon occurred that history books call “westward expansion.” Pioneers in search of religious freedom, wealth, independence, land ownership, and growing room headed west... READ MORE > read more

Using a smart phone during an attack

09/06/2016 05:52:04 AM

I admit that I use my iPhone way more than I wish I did. When I see other people in public using their phones instead of engaging with the world around them,... READ MORE > read more

Getting to Know Anna

09/06/2016 05:51:41 AM

You know what’s contributors and moderators think about migraine, but there’s more to us than migraine. We’re doing a Getting to Know… series to introduce you to the people behind the... READ MORE > read more

Breaking my own rules

09/05/2016 22:00:50 PM

Okay. It’s confession time. I was packing for my final trip of the summer when I made a startling discovery. Flipping open the pill box containing my naratriptan, I found just four little... READ MORE > read more

Community Feedback: Migraine Warning Symptoms

09/02/2016 05:59:46 AM

When Kerrie Smyres’article about migraine symptoms that go far beyond head pain was posted on our Facebook, many of you shared what signs you have to deal with preceding a migraine. They... READ MORE > read more

Participants Needed for Online Study on Trigger Identification & Management

09/01/2016 07:18:21 AM

Would you like help with identifying your migraine triggers and learning to manage them? Are you interested in helping other people with migraine? You can do both by participating in an online... READ MORE > read more

I’m sorry for what I said when I was in prodrome

09/01/2016 07:17:40 AM

I used to say “I’m sorry for what I said when I was hangry,” but what with my eating protein-rich foods every three hours to keep my blood sugar even and ward... READ MORE > read more

Research Opportunity from Immaculata University

08/31/2016 19:50:41 PM

Migraine is a common chronic pain disorder affecting nearly 12% of the US population. Chronic migraine, in particular, is a debilitating disease often associated with comorbid psychiatric, medical, and medication overuse issues.... READ MORE > read more

The Medication Experiments

08/31/2016 06:18:31 AM

Unfortunately, I haven’t been able to reliably figure out why this happens, but sometimes my tried-and-true medications just don’t work right. Take, for instance, the migraine I had this past Sunday. I... READ MORE > read more

Big News From Headache On the Hill

08/30/2016 04:24:09 AM

Every year, the Alliance for Headache Disorders Advocacy (AHDA) coordinates a day of stomping on Capitol Hill for migraine research. Patients, caregivers, advocates and doctors spend a day meeting with multiple offices... READ MORE > read more

Migraine: More than a headache, it’s a “life-ache”

08/29/2016 19:21:14 PM

Those with migraine know that it’s so much more than “just a headache.” Migraine can impact all aspects of life, ranging from relationships to the ability to work. As if managing the... READ MORE > read more

Finding safe space

08/29/2016 05:55:16 AM

I’ve wanted to address this issue for quite a while, but hesitated because there are no easy answers that fit neatly in a single blog post. Honestly, a volume of encyclopedias probably... READ MORE > read more

Getting to Know Elizabeth

08/28/2016 12:24:09 PM

You get to know a lot about’s contributors and moderators through our writing and interaction on the site, but it’s all connected to migraine. Sometimes it’s nice to get to know... READ MORE > read more

Examining life through the unwanted lens with migraine

08/26/2016 05:34:13 AM

When living with a chronic health condition like migraine, many migraineurs are forced to take a step back and view things in a new light. For better or for worse, your daily... READ MORE > read more

A different path

08/25/2016 08:55:56 AM

I will never forget the day I gave up hope. I’d been stubbornly clinging to the possibility that a surgical procedure would finally eradicate migraine for good. I was finished being “the... READ MORE > read more

Planning for Life’s Big Moments: A Case Study of a Chronic Migraineur

08/24/2016 05:50:21 AM

Our lives are made up of a succession of moments – some tiny and insignificant, others small and infinitely precious, and still others that are so immense we can do little but... READ MORE > read more

Migraine Minefield: Jury Duty

08/23/2016 05:31:59 AM

The dreaded letter came in early July. I was being summoned to jury duty. Ughhhhh. My first reaction was to begin looking for the letter my former neurologist wrote to my county’s... READ MORE > read more

Getting to Know Katie

08/22/2016 06:05:36 AM

You know what’s contributors and moderators think about migraine, but there’s more to us than migraine. We’re doing a Getting to Know… series to introduce you to the people behind the... READ MORE > read more

Sensory Overload

08/19/2016 12:47:10 PM

“It’s too much. All these people racing down the sidewalk, the traffic, the noise… I feel like I can’t breathe, like I’m being crushed.” This was my assessment of the streets of... READ MORE > read more

Migraine is treatable, but…

08/18/2016 06:59:56 AM

There’s an effort within Migraine advocacy to promote the message that Migraine is treatable. Technically, this is true. In reality, the answer is much more complicated. Migraine is treatable just like heart... READ MORE > read more

The Important Day YOU Completely Missed

08/17/2016 15:29:57 PM

Recently, patient advocate, Janet Geddis, otherwise known as, “The Migraine Girl”, wrote an article for the community about the important day she completely missed due to a vicious migraine. The question was... READ MORE > read more

A New Perspective on Migraine Specialists

08/16/2016 08:39:46 AM

Visits to my local headache clinic are usually stressful. First, there’s the travel involved with its loud, stinky, and visually overwhelming triggers. Despite being loaded with acute meds, protein-rich snacks, water, and... READ MORE > read more

Migraine in the ER: Treatment Guidelines From the American Headache Society

08/14/2016 23:46:23 PM

During a migraine attack, going to the ER can seem like a nightmare come true. The lights are blaring, sounds are loud and unpredictable, and the odors of a hospital turn your... READ MORE > read more

Cancelling Out the Good

08/13/2016 22:54:56 PM

Just as the placebo effect can have a positive impact on treatment results, the opposite can be true as well. It’s called the nocebo effect. Because the mind and body are inseparable,... READ MORE > read more

Migraine and losing your sense of time

08/12/2016 06:11:29 AM

In the last few months, my migraine brain has been behaving a lot better than usual. I’m very grateful for that, and I’m hoping that whatever the secret key is keeps working.... READ MORE > read more

Chronic migraine or something else?

08/11/2016 05:46:51 AM

Do you have headache pain every day? Can you remember the exact day the pain started? There is another primary headache disorder that mimics the symptoms of Chronic Migraine. It’s called New... READ MORE > read more

Good Migraine Citizenship

08/10/2016 05:53:12 AM

Online support groups can be a life-saver for many with migraine who are too sick to socialize any other way. Having the support of others who understand what you are going through... READ MORE > read more

The undeniable importance of spending time with friends

08/09/2016 05:57:06 AM

A couple of weeks ago, I went to this adorable local neighborhood restaurant, one I used to frequent when I lived only blocks away. One of our friends was playing a show... READ MORE > read more

Understanding the Cynic

08/08/2016 05:46:12 AM

“Migraine is treatable.” That statement is small comfort to many who have lived with migraine for decades with minimal or substandard treatment. It fails to encourage those who have been through years... READ MORE > read more

Cefaly Take Two: Revamped Migraine Medical Device Available in U.S.

08/07/2016 14:54:50 PM

The business of wearable medical technology is booming. From biofeedback headgear for relaxation to contact lenses that can detect glucose levels, anyone with some extra cash to burn is sure to become... READ MORE > read more

Turning on a Dime: Migraine and Unpredictability

08/05/2016 07:25:51 AM

A common frustration shared in many accounts of life with migraine, is the true unpredictability of when an attack may strike. Sure, keeping food journals, avoiding certain environmental triggers, and medications may... READ MORE > read more

Three to a Bed: Me, My Husband, & Migraine

08/04/2016 06:46:52 AM

When my husband and I dated long distance, I looked forward to living in the same place so we could share a bed. Twenty years have dispelled that romantic notion. It’s not... READ MORE > read more

Three Things About My Migraine

08/03/2016 06:21:55 AM

This summer, we at wanted to share three things about our individuals migraines with the community that our members might not know. Migraine can be such an alienating disease, and we felt... READ MORE > read more

I admit it: other people’s breakthroughs in migraine treatment sometimes make me envious

08/01/2016 20:23:43 PM

Pretty recently, one of my friends started getting what she believes to be migraine attacks. It sounds like this is most likely connected to perimenopause and the dizzying hormonal changes that accompany... READ MORE > read more

Conference Migraine Strikes Again

08/01/2016 15:14:37 PM

In June, I had a migraine-free streak that lasted eight whole days! I was thrilled. I wished fervently that the streak would continue, especially since I was heading to Florida for a... READ MORE > read more

When the headache feels like a lightning strike

08/01/2016 06:10:31 AM

Every one of us has faced the fear that our headache symptoms might just be a sign of something far worse. We worry about cancer, stroke, anyeurism, and the ethereal unknown. On... READ MORE > read more

CGRP Drugs for Migraine: A Patient’s Experience

07/31/2016 14:27:46 PM

In the excitement about the CGRP drugs in development for migraine prevention, we’ve heard a lot about the promising research findings, including minimal side effects. I’ve kept wondering what it’s like for... READ MORE > read more

Stop the patient blaming!

07/29/2016 09:35:26 AM

In the very same week, I ran across two articles. Both were slideshow lists of poor lifestyle choices commonly made by patients with fibromyalgia and migraine.  They were titled “5 don’ts of... READ MORE > read more

Requiem for the Disabled

07/28/2016 08:36:49 AM

I was recently released from Jefferson Headache Clinic in Philadelphia, just prior to the start of the Democratic National Convention that was being hosted in the city. I’m at my parent’s house... READ MORE > read more

Let’s Give Ourselves Some Credit

07/28/2016 06:25:53 AM

In Tammy Rome’s recent post “30 Dirty Little Secrets About My Life With Migraine” she reminded us that perfection is unattainable; that we’re only human; and that we’re bound to make mistakes.... READ MORE > read more

Gentle post-migraine recovery

07/27/2016 18:53:36 PM

After a migraine, do you ever have that “beat up” feeling as if you’ve been hit by a truck? That’s your body telling you to take it easy. Do you give yourself... READ MORE > read more

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